The Center for the Study of Religion  and Disability                

©Dr. Jeff McNair, Director  

 

Home

Bibliography

Provided below is a listing of articles related to supporting adults with disabilities in the community.  Most of the articles are particularly relevant in relation to community supports through local churches.  They are provided to assist others doing research in this area.  Brief comments are sometimes added which are useful to me in remembering particular content of an article.

Should you have other resources you might suggest, please email me with them at CSRD@jeffmcnair.com and I will try to post them in a timely manner.

Alba, R. (1982).  Taking stock of network analysis: A decade’s results.  Research in the Sociology of Organizations, 1.      

Alker, H. (1983). Paradigms for studying interactional and environmental effects with mentally retarded clients.  In K. Kiernan, M. Begab & R. Edgerton, (Eds.) Environments and Behavior, Baltimore: University Park Press.             

                   McNair criteria /reciprocal int./undermanned v. overmanned

Baller, W.R. (1936).  A study of present social status of a group of adults who, when they were in elementary school, were classified as mentally deficient.  Genetic Psychology Monographs, 18(3), 165-244.      cited in Riordan, J. & Vasa, S.F. (1991)     

50% members of religious organizations regular attendance at services and participation in services was low

Banja, J. D. (1995).  Religiousity and spirituality among persons with disabilities: Application to rehabilitation environments.  Draft Paper.      

                   Spiritual assessment 

Batson, D.C. (1976).  Religion as prosocial: Agent or double agent.  Journal for the Scientific Study of Religion, 15, 1, 29-45.     

Religion as end, means, quest

Bellah, R.N. (1996).  Habits of the heart: Individualism and community in American life.  University of California Press: San Francisco.       

Berger, P. & Neuhaus, R. (1977).  To empower people: The role of mediating structures in public policy.  Washington DC: American Enterprise Institute for Public Policy Research.        

Mediating structures

Berkson, G. (1978).  Social ecology and ethnology of mental retardation.  In G.P. Sackett (Ed.) Observing behavior volume 1: Theory and applications in mental retardation.  Baltimore: University Park Press.     

                   “Perhaps the most important argument against using natural environments  as definers of mental deficiency is the possible detrimental consequences for the delivery of services.  Ecological concepts would involve a complication of planning by government and private services that would need ways of thinking that are not yet adequately worked out.  This compilation could result in inappropriate reduction of services.” (p. 405)     

Bezilla, R. (Ed.). (1993).  Religion in America 1992-1993. Princeton NJ: Princeton Religion Research Center.    

Bogardious, E. (1959).  Social distance.  Yellow Springs, OH: Antioch Press.     

Boissevain, J. & Mitchell, J.D. (Eds.), (1973).  Network analysis.  The Hague: Mouton     

Bradley, V.J., Ashbaugh, J.W. & Blaney, B.C. (1994).  Creating individual supports for people with developmental disabilities.  Baltimore:  Brookes Publishing.      

Bronfenbrenner, U., Moen, P. & Barbarino, J. (1984).  Child, family and community.  In R.D. Parke (Ed.), Review of child development research (vol 7).  Chicago: University of Chicago Press.               

Burt, R. & Minor, M. (Eds.), (1983).  Applied network analysis.  Beverly Hills: Sage Publications           

Caplan, G. (1976).  Support systems and mutual help.  New York: Grune & Stratton.        

McNair criteria/independence

Carter, S. L. (1993).  The Culture of Disbelief.  New York; BasicBooks/Harper Collins .  

“Today, scientists are less likely than the general population to describe themselves as religious.” p. 163      “The more that the clause is used to disable religious groups from active involvement in the programs of the welfare state, or, for that matter, from active involvement in the public square that is the crucible of public policy, the less the religions will be able to play their proper democratic role of mediating between the individual and the state and the less they will be able to play their proper theological role of protecting the people of God.”

Clegg, J. & Standen, P. (1991).  Friendship among adults who have developmental disabilities.  American Journal on Mental Retardation, 95, 6, 663-671. 

Collins, A. H. & Pancoast, D.L. (1976).  Natural helping networks:  A strategy for prevention.  Washington, D.D.: National Association of Social Workers.

Natural support      McNair criteria /all areas
Excellent resource in all areas of natural support

Craven, P. & Wellman, B. (1973).  The network city.  Sociological Inquiry, 43 pp57-88      cited in Collins & Pancoast (1976)     

Network evaluative criteria/density, range, pathways

Ducharme, G., Beeman, P., DeMarasse, R., & Ludlam, C. (1994).  Building community one person at a time.  In Bradley, V., Ashbauch, J. & Blaney, B. (Eds.), Creating individual supports for people with developmental disabilities:  A mandate for change at many levels (pp. 347-360).  Baltimore: Brookes Publishing Co.        

Durkheim, E. (1951).  Suicide: A study in sociology, translated by John A Spaulding and George Simpson.  Glencoe, IL:  Free Press.           

people need to feel a sense of belonging and responsibility for others  people with obligations to others tend to endure difficulties. 

people with unclear obligations to others are much more prone to suicide

Ellis, H, Ellis, E., & Warren, G.T. (1984).  An open letter to pastors and to parents.  The Exceptional Parent, 14(1), 39-44.     

ideas of concerns on part of pastors/Good parent perspective

Erickson, B., Nosanchuk, T., & Lee, E. (1981).  Network sampling in practice: Some second steps.  Social Networks, 3.           

Farber, B. (1968).  Mental Retardation: Its social context and social consequences.  New York: Houghton Mifflin.         

“... families tend to disengage themselves from community relationships and to focus their attention on problems within the family.”

Fawcett, S.B. (1991).  Some values guiding community research and action.  Journal of Applied Behavior Analysis, 24, 621-636. 

models of change
-prevention
-empowerment
-diffusion
-community development
Supports “caring distance”      “Changes in knowledge and behavior at only one level do not usually produce significant and durable changes in desired community outcomes.” (p. 626)

Ferguson, P.M. & Ferguson, D.L. (1993).  The promise of adulthood.  In M.E. Snell (Ed.) Instruction of students with severe disabilities.  Upper Saddle River, NJ: Prentice Hall.

Supported Membership      The more deeply embedded . . . in the life of the neighborhood, workplace and the city in general, the more people will notice if he is not there and will work to keep him as a member of the community. (p. 602)

Fewell, R.R. (1986).  Supports from religious organizations and personal beliefs.  In Fewell, R.R. & Vadasy, P.F. (Eds.),  Families of handicapped children: Needs and supports across the life span (297-316).  Austin Texas: Pro-Ed.        

29% supported by organized religions
66% supported by personal religious beliefs

Forest, M. & Pearpoint, J. (1992).  Families, friends and circles.  In J. Nisbet (Ed.), Natural supports in school, at work, and in the community for people with severe disabilities (65-86).  Baltimore: Brookes Publishing .

Froland, C., Pancoast, C., Chapman, N., & Kimboko, P., (1981).  Linking formal and informal systems.  In B. Gottlieb (Ed.), Social networks and social support in community mental health.  Beverly Hills, CA: Sage Publications.      

                   McNair criteria /bureaucracy

Gaventa, W.C. (1986).  Religious ministries and services with adults with developmental disabilities.  In J.A. Summers (Ed.), The right to grow up:  An introduction to adults with developmental disabilities (pp. 191-226).  Baltimore: Paul H. Brookes.   

-participation barriers
-meaning of community
-?’s doctrine of community      McNair criteria /reciprocal part
-parents have more trust in their religious organization than in other public or private services

Greenspan, S, & Shoultz, B. (1981),  Why mentally retarded adults lose their jobs:  Social competence as a factor in work adjustment.  Applied Research in Mental Retardation,2,23-38.        

Harrison, A., Serafica, F. & McAdoo, H. (1984).  Ethnic families of color.  In R.D. Parke (Ed.), Review of child development research (vol. 7).  Chicago: University of Chicago Press.           

Hazasi, S.B., Gordon, L.R. & Roe, C.A. (1985).  Factors associated with the employment of handicapped youth exiting high school form 1979-1983.  Exceptional Children, 51, 455-469.       

Heifetz, L.J. (1987),  Integrating religious and secular perspectives in the design and delivery of disability services.  Mental Retardation, June, 127-131. 

“It is rarely the case that religious perspectives are consciously and explicitly ruled out.  Rather, they simply never come up for consideration.  The separation doctrine is so deeply embedded in our thinking that the service system of secular professionals has a longstanding blind-spot for religious issues.” (p. 127)

Cross fertilizing arguments
“efforts of persons in the “two universes” are more likely to be redundant or antagonistic than complementary” (p. 127)

Heifetz, L.J., & Franklin, D.C. (1982).  Nature and sources of the clergy’s involvement with mentally retarded persons and their families.  American Journal of Mental Deficiency, 87(1), 56-63.     

“Unfortunately, neither positive or negative influences of a family’s social systems are regularly noticed by professionals, who all too often confine their attention to the small universe in which they and the  affected family are the sole inhabitants.” p. 56

McNair criteria /community position
clergy felt great responsibility for, but little competence in the religious training of persons with mental retardation

Heller, K. (1989).  The return to community. American Journal of Community Psychology, 17(1), 1-15.

community      McNair criteria /connectivity/community facing
-commonality
-connectivity

Hoeksema, T.B., & Stimson, R.O. (1993a, January).  Normalization-Pro and con.  Networks, pp. 1-5.         

Hoeksema, T.B., & Stimson, R.O. (1993b, January).  Reactions to normalization.  Networks, pp. 3-5.   

Hoeksema, T.B. (1995).  Supporting the free exercise of religion in the group home context.  Mental Retardation, 33(5), 289-294. 

free exercise of religion / Schopper v. Huntley

Hoffman, J.L. (1969).  Mental retardation, religious values and psychiatric universals.  In W. Wolfensberger & R.A. Kurtz (Eds.), Management of the family of the mentally retarded (pp. 339-343.           

Hollane, P. & Leinhardt, S. (Eds.) (1979).  Perspectives on social networks.  New York: Academic Press.

Hornstein, B. (1997).  How the religious community can support the transition to adulthood: A parent’s perspective.  Mental Retardation, 485-487.        

                   McNair criteria / integration - social recognition

Hornstein, Becca, (1997).  How the religious community can support the transition to adulthood: A parent’s perspective.  Mental Retardation, 485-488.       

Social supports

Illich, I., Zola, I.K., McKnight, J., Caplan, J., & Shaiken, H. (1977).  Disabling Professions.  Trowbridge, Great Britain:  Redwood Burn Limited.      

                   Natural support      iatrogenic effects of human service  agencies

Katz, K. (1968).  The retarded adult in the community.  Springfield, Illinois: Charles C. Thomas.          

Historical comments

Kazak, A., & Marvin, R. S. (1984).  Differences, difficulties, and adaptation:  Stress and social networks in families with a handicapped child.  Family Relations, 33, 67-77.           

Suggest that it is the informal network which is the most critical.

Klein, J. (1997).  In God they trust.  New Yorker, 40-48.        

Church programs in inner city

Klovdahl, A. (1981). A not on the images of networks.  Social networks, 3.     

Klovdahl, A. (1986).  Viewnet: A new tool for network analysis.  Social networks, 8.           

Knoke, D. & Kulinski, J. (1982).  Network analysis.  Beverly Hills, CA: Sage Publications.          

Kregel, J,. Wehman, P., Seyfarth, J., & Marshal, K. (1986).  Community integration of young adults with mental retardation: Transition from school to adulthood.  Education and Training of the Mentally Retarded, 21(1). 35-42.           

46% individuals with mental retardation reported attending church
14% participated in church   activities  -choir/clubs

Landesman-Dwyer, S. Berkson, G. & Romer, D. (1979).  Affiliation and friendship of mentally retarded residents in group homes.  American Journal of Mental Deficiency, 83, 6, 571-580. 

affiliation is more strongly predicted by the size of an individual’s group home and other characteristics of the residents in the home than by personal traits (sex, age, intelligence)     

Laumann, E. & Pappi, F. (1973). New directions in the study of community elites.  American Sociological Review, 38.  Reprinted in Leinhardt (Ed.), 1984.

Leinhardt, S. (Ed.), (1977).  Social networks: A developing paradigm.  New York: Academic Press.           

Lenrow, P. (1978).  Dilemmas of professional helping: Continuities and discontinuities with folk helping relationships.  In L. Wispe (Ed.), Altruism, sympathy, and helping.  New York: Academic Press.      

                    long term social exchange v. aid to strangers in distress

Lenrow, P. (1978).  The work of helping strangers.  American Journal of Community Psychology, 6, 555-571.       

Lenrow, P.B., & Burch, R.W., (1981).  Mutual and professional services:  Opposing or complimentary?  In B.A. Gottlieb, (Ed.), Social networks and social support in community mental health.  Beverly Hills, CA: Sage Publications.    

“The more complex the life situation, the more fully the resources of the second person must be used in order for the first person’s resourcs to be effective on the second person’s behalf” p239
“When professional training encourages suc a mind set, there is a danger that professional helping will not only neglect caring, but will neglect so much important information about people that it will not server utilitatian values either.” p 245      

McNair crteria /independence
-professional role perceptions

Lieberman, L.M. (1992).  Preserving special education . . . for those who need it.  In W. Stainback & S. Stainback (Eds.) Controversial issues confronting special education: Divergent perspectives.  Needham Heights, MA: Allyn & Bacon.           

“For example, a teacher of the mentally retarded is so much more than a teacher.  He or she is a member of a medical management team, a social worker’s team, a psychologist’s team.  He or she must be an expert on mental retardation in order to participate.  Being mentally retarded is a bigger concept than being mentally retarded in school.  It is being mentally retarded in life that must be addressed.” (p 41)

Linney, J.A. (1990). Community psychology into the 1990’s:  Capitalizing opportunity and promoting innovation.  American Journal of Community Psychology, 18, 1, 1-17.

Trends-- “we have seen the “back to basics” movement in education, a renewed call to patriotism, increased reliance on churches, and traditional conceptions of family for moral direction and strength.” (p. 3)     

Mallory, B. (1986).  Interactions between community agencies and families over the life cycle.  In R. Fewell & P. Vadasy (Eds.), Families of handicapped children.  Austin TX: Pro-ed Inc. 

-involuntary increase in contacts with formal systems
-Church as “buffer system”      McNair criteria /mediating structures

Maton, K. I. & Rappaport, J. (1984).  Empowerment in a religious setting: A multivariate investigation.  In J. Rappaport, C. Swift, & R. Hess, (Eds.),  Studies in empowerment: Steps toward understanding and action.  New York: Haworth Press.     

great empowerment stuff      McNair criteria /empowerment p40

Maypole, D.E. & Anderson, R.B. (1987).  Culture-specific substance abuse prevention for blacks.  Community Mental Health Journal, 23, 135-139. 

McKnight, J. & Kretzman, J. (1984).  Community organizing in the 80’s:  Toward a post-Alinsky agenda.  Social Policy, 14, 15-17.           

McKnight, J. (1977).  Professionalized service and disabling help.  In I. Illich, I. Zola, J. McKnight, J. Caplan, & H. Shaiken (Eds.), Disabling Professions.  Trowbridge, Great Britain:  Redwood Burn Limited.         

McKnight, J. (1985).  A reconsideration of the crisis of the welfare state.  Social Policy, summer, 27-30.  

“The social welfare system is, itself, the tool of a technological society for producing services in lieu of care, and comodification in lieu of well being.”  (p. 30)
GOOD SET OF RESEARCH QUESTIONS      “The reality of life defined by social welfare systems is that it creates a monopoly on forms of action by legitimate actors.”
(p. 29)
“. . . the problem is best understood as the rapid invasion of spheres of free action by technologically-based systems.  Rather than policies allowing extension, the basic problem is better understood as defending existing spheres from invasion.” (p. 30)

McKnight, J. (1987).  Regenerating community.  Social Policy, Winter, 54-58.  

McKnight, J. (1989).  Do no harm: Policy options that must meet human needs.  Social Policy, 20, 5-15.      

McKnight, J. (1993).  A sampling of ideas for involving schools in community revitalization.  Equity and Choice, Winter, 30-31.  

3 steps in moving partnership concept from rhetoric to reality
-organize group to explore community partnerships
-create a vision of how partnership could address issues
-move for quick implementation      -no mention of churches

McKnight, J. (1994).  Two tools for well-being: Health systems and communities.  American Journal of Preventative Medicine, 10, 23-25.           

McMillan, D.W., & Chavis, D.M. (1986).  Sense of community: A definition and theory.  Journal of Community Psychology, 14, 6-23      Strongest predictors of actual sense of community

-expected length of com residence
-satisfaction with com
-number of neighbors one could identify by first name      McNair criteria /durability
-cohesiveness through
--common history
--common experiences
--emotional closeness   --common identity and destiny

McNair, J. & Rusch, F.R. (1991).  Parent involvement in transition programs.  Mental Retardation, 29, 2, 93-101.       

religious affiliation/church
            attendance of parents in survey

McNair, J. & Smith, H. (1998). Community Based Natural Support through Local Churches.  Mental Retardation, June, p237-241.       

McNair, J. & Smith, H. (2000).  Church attendance of adults with mental retardation.  Education and Training in Mental Retardation and Developmental Disabilities, 35(2) 222-225.       

52% of DD adults reported attending church in past 7 days

McNair, J. & Swartz, S.L. (1997).  Local church support to individuals with developmental disabilities.  Education and Training in Mental Retardation and Developmental Disabilities, 32, 4, 304-312.       

survey of churches 82% had individuals with DD in their congregations

McNair, J. (1993).  The local church as an agent of natural supports to individuals with developmental disabilities.  In J. McNair & G. Legutki, (Eds.), Issues in Transition ll.  San Bernardino, California: The Transition Specialist Program at California State University, San Bernardino.  (ERIC Document Reproduction Service No. ED 371 503)       

McNair, J. (1997).  A discussion of networks supporting adults with disabilities in the community.  The Center for the Study of Religion and Disability.  Available at, http://www.jeffmcnair.com/CSRD/networks.htm
          4 network types described   -Network evaluative criteria

McNair, J. (2000).  The local church as a network supporting adults with disabilities in the community:  One perspective.  Journal of Religion, Disability and Health, 4,1, 33-56.           

Mitchell, C. (1969).  The concept and use of social network’s.  In J.C. Mitchell (Ed.), Social Networks in Urban Situations.  Manchester, England: University of Manchester Press, pp1-50.  

Network evaluative criteria
content, directedness, durability, intensity of interaction...nature of links vs. structural properties     

Mitchell, R. & Hurley, D. (1981).  Collaboration with natural helping networks: Lessons from studying paraprofessionals.  In B. Gottlieb (Ed.), Social networks and social support in community mental health.  Beverly Hills, CA: Sage Publications.    

“Thus, established natural networks may be just as selective as the formal service system in preferring people who are functioning relatively well and who are likely to be the most responsive to assistance. . . It would be ironic if the populations underserved by the formal service system . . . were also those that were least readily accepted into some indigenous helping networks.” p 292

McNair criteria /community focus
community  -”there is a need to view the interpersonal helping process within its broader environmental context and the understand how systemic factors influence the pattern of relationships among professionals, indigenous personnel, and the targets of helping efforts.”  p279

Moore, J., Hamerlynck, L., Barsh, E., Spieker, S., & Jones, R. (1982).  Extending Family Resources.  Seattle WA: Children’s Clinic and Preschool.

Moskos, C. (1988).  A Call to Civil Service: National Service for Country and Community.  Free Press/MacMillan: New York, New York.      

community service responsibilities

Mungen, D. (October 5, 1997).  Warren Currie: Tackling the spiritual side of the homeless problem.  Los Angeles Times p. M3.     

Newbigin, L. (1979).  Not whole without the handicapped.  In G. Muller-Fahrenholz (Ed.), Partners in life (Faith and Order Paper No. 89).  Geneva: World Council of Churches   

Nisbet, J.  (Ed.). (1992).  Natural supports in school, at work, and in the community for persons with severe disabilities.  Baltimore: Brookes Publishing.      

O’Donnell, C.R., Tharp, R.G., & Wilson, K. (1993).  Activity settings as the unit of analysis:  A theoretical basis for community intervention and development.  American Journal of Community Psychology, 21, 501-520. 

Olasky, M. (1992).  The tragedy of American compassion.  Washington DC: Regnery Publishers.      

Park, L.D. (1975).  Barriers to normalcy for the handicapped child in the United States.  Rehabilitation Literature, 36, 108-111. 

“ it is absolutely taboo to talk about religion or man’s relationship to God as essential to successful living (and certainly not as an objective of rehabilitation)!  I completely reject the idea of eliminating religion from what must be suggested to the handicapped as an important contribution to their lives. . . what I am talking about is a basic relationship of man to God (as opposed to man’s       5 barriers listed
#1-A confused value system by a confused government makes normalization for the handicapped virtually impossible
“One of the astonishing things about the times in which we live is how confused our value system really is. . . (across>)

Pearpoint, J. (1991).  From behind the piano:  The building of Judith Snow’s unique circle of friends.  Toronto: Inclusion Press.           

Perske, R. (1980, Fall).  Some new policies and practices in churches and synagogues.  Journal of the National Apostolate with Mentally Retarded Persons, 19.           

Perske, R. (1988).  Circles of friends:  People with disabilities and their friends enrich the lives of one another.  Nashville: Abington Press.     

Peters, R.K. (1991).  Accommodations for and participation of persons with disabilities in religious practice.  Education and Training in Mental Retardation, 26, 151-155.      

Pruyser, P. W. (1969).  The challenge of mental retardation for the church.  In W. Wolfensberger & R.A. Kurtz (Eds.), Management of the family of the mentally retarded (pp. 339-343.       

Rappaport, J. (1977). Community psychology: Values, research and action.  New York: Hold, Rinehart & Wilson.          

levels of intervention analysis

Rappaport, J. (1984).  Studies in empowerment: Introduction to the issue.  In J. Rappaport, C. Swift, & R. Hess, (Eds.),  Studies in empowerment: Steps toward understanding and action.  New York: Haworth Press.           

McNair criteria /empowerment natural support

Rappaport, J. (1986).  In praise of paradox.  In E. Seidman and J Rappaport (Eds.), Redefining social problems.  New York: Plenum Press.     

multiple solutions  

McNair criteria /indigenous autonomous agents

Rappaport, J. Swift, C. & Hess, R. (Eds.)  (1983).  Studies in empowerment: Steps toward understanding and action.  New York: Haworth Press.           

Riordan, J. & Vasa, S.F. (1991).  Accommodations for and participation of persons with disabilities in religious practice.  Education and training of the mentally retarded, June, 151-155. 

good references 

-decreasing availability of proactive accommodations and programs for individuals with mental retardation with increasing age
-need for assistance to clergy in understanding the needs of persons with disabilities and accommodations which would enable their more active participation

Ryan, W. (1971).  Blaming the victim.  New York: Vintage Books.     

Sarason, S.B. (1977).  The psychological sense of community: Prospects for a Community Psychology.  San Francisco: Jossey-Bass Publishers.      

Sarason, S.B., & Lorentz, E. (1979).  The challenge of the resource exchange network.  San Francisco: Jossey-Bass.           

Schalock, R., Harper, R., & Carver, G. (1981).  Independent living placement: Five years later.  American Journal of Mental Deficiency, 86,2,170-177.        

                   Church most frequently attended community facility

Schalock, R.L., Harper, R.S., & Carver, G. (1981).  Independent living placement: Five years later.  American Journal of Mental Deficiency, 86(2), 170-177.     

adjustment of adults with mental retardation placed into independent housing 5 years prior to study found the most frequently accessed community facilities in descending order were; church, bowling alley, restaurant, laundromat, and grocery store

Schleien, S., Green, F., & Heyne, L. (1993).  Integrated community recreation.  In M. Snell (Ed.), Instruction of students with severe disabilities, Upper Saddle River, NJ: Prentice-Hall Inc. 

“. . . a significant advantage offered by integration into existing generic services is the potential to gain a more extensive network of social contacts.  Generic programs usually serve many members of the community.  Segregated programs exist in isolation, outside the community network.  An individual who becomes integrated into an already existing community program becomes exposed to a vast network of social relations.” p 532      McNair criteria /integration

Scuccimarra, D.J., & Speece, D.L. (1990).  Employment outcomes and social integration of students with mild handicaps: The quality of life two years after high school.  The Journal of Learning Disabilities, 23(4), 213-219.

76% of attenders > 4x/month
83% attend with family 27% friends      -students with mild disabilities
100% television viewing
90.6% going to movies
63.1%  church attendance as social activities most frequently participated in

Seidman, E. & Rappaport, J. (1986).  Redefining Social Problems.  Plenum Press: New York.      

Shapiro, J.P. & Wright, A.R. (September 9, 1996).  Can churches save America?  U.S. News & World Report, 46-53.        

Sharkey, P. (1989).  Social networks and social service workers.  British Journal of Social Work, 19.        

Sharkey, P. (1990).  Social networks and social service workers: A reply to Timms.  British Journal of Social Work, 20.        

Sherman, J.A. & Sheldon, J.B. (1991).  Values for community research and action: Do we agree where they guide us?.  Journal of Applied Behavior Analysis, 24, 653-655.       

Stagg, V. & Catron, T. (1986).  Networks of social supports for parents of handicapped children.  In R.R. Fewell & P.F. Vadasy (Eds.), Families of handicapped children, 279-295.       

Stone, G.C. (1979).  Patient compliance and the role of the expert.  Journal of Social Issues, 35, 34-59.           

Caring v. services

Stubblefield, H.W. (1965).  The church’s ministry in mental retardation.  Nashville, Tennessee: Broadman Press.     

Stubblefield, H.W. (1964).  The ministry and mental retardation.  Journal of Religion and Health, 3, 136-147.     

Stubblefield, H.W. (1969).  Religion, parents and mental retardation.  In W. Wolfensberger & R.A. Kurtz (Eds.), Management of the family of the mentally retarded (pp. 339-343.       

Suelzle, M. & Keenan, V. (1981).  Changes in family support networks over the life cycle of mentally retarded persons.  American Journal of Mental Deficiency, 86, 267-274.       

Swift, C. (1984).  Foreword empowerment: An antidote for folly.  In J. Rappaport, C. Swift, & R. Hess, (Eds.),  Studies in empowerment: Steps toward understanding and action.  New York: Haworth Press.     

paternalism v. empowerment

McNair criteria /empowerment
introductory stuff

The President’s Panel on Mental Retardation (1962).  A proposed program for national action to combat mental retardation.  Washington D.C.: Superintendent of Documents. 

allusions to articles by religious groups      positive portrayal by gov.

Thompson, C. (1997).  Burned out.  Money Matters, May, Christian Financial Concepts.        

“Churches sometimes are cold toward them because of their children’s behavior, and in some cases church representatives may even ask them to leave.  Thus a couple may take turns attending church so one of them can be home with their child,” (p. 8)

Timms, E. (1990).  Social networks and social service workers: A comment on Sharkey.  British Journal of Social Work, 20.        

Trevillion, S. (1992).  Caring in the community: A networking approach to community partnership.  Harlow/Essex, Great Britain: Longman Goup.      

                   natural network “myths”      McNair criteria /Networking

U.S. Dept. of Education (1994).  Federal Grant review, Reference # H133F40030. Katherine D. Seelman Director.        

“Why is the “church” viable as the focal point of integration in Southern California in the 1990’s”

Underwood-Gordon, L. (1995, May).  A working model of health: spirituality and religiousness as resources: applications to persons with disability.  Conference on the roles of religiousness and spirituality in rehabilitation and the lives of those with disability.  National Institutes of Health.          

Wade, A.D. (1964).  Why we hate the poor.  Renewal, IV, p. 15.     

supplement our take the place of the old measures by which we protected those who fell along he way, we face new realities armed with little more than immensely dangerous and costly myths.”  (p. 15)      “The growth of our population, coupled with urbanization, automation and integration, have so outstripped our human imaginations that, instead of developing new social arrangements that can

Walsh, M. (November 1, 1995).  Riley backs reversing Title 1 Felton ruling.  Education Week, p. 24      

“Secretary of Education Richard W. Riley declared last week that he would support reversal of a 1985 U.S. Supreme Court ruling that barred public school teachers from delivering remedil-education services on the premises of religious schools”

Warren, D. (1980).  Assessing community support systems in different types of neighborhoods.  In J. Garbarino & H. Stocking (Eds.), Protecting children from abuse and neglect.  San Francisco: Jossey-Bass.           

Weisner, T. Belzer, L, & Stolze, L. (1991).  Religion and families of children with developmental delays.  American Journal on Mental Retardation, 95, 6, 647-662. 

excellent comparison of religious vs. nonreligious parents relative to support

Westerhoff, J. (1976).  Will our children have faith?  New York: The Seabury Press.           

Wilhite, B., Reilly, L.J., & Teaff, J.D. (1989).  Recreation and leisure services and residential alternatives for persons with developmental disabilties.  Education and Training in Mental Retardation, 24(4), 333-340.       

survey of recreational opportunities offered by community residential alternatives in Illinois, indicated only 17% of the residential programs listed religious activities as an available option

Wolfensberger, W. (1979).  An attempt toward a theology of social integration of devalued/handicapped people.  Information Service, 8(1), 12-26.     

Wolfensberger, W. (1972).  The principle of normalization in human services.  Toronto:  National Institute on Mental Retardation.           

Wolfensberger, W., & Krutz, R.A. (1969).  Management of the Family of the Mentally Retarded.  Chicago: Follett Educational Corporation.           

Zuk, G.H. (1959).  The religious factor and the role of guilt in parental acceptance of the mentally retarded child.  American Journal of Mental Deficiency, 64, 139-147. 

Zuk, G.H., Miller, R.L., Bartram, J.B., & Kling, F. (1961). Maternal acceptance of retarded children: A questionnaire study of attitudes and religious background.  Child Development, 32, 525-540. 

 

CSRD@jeffmcnair.com